Job Details: DEBRA Ireland: Research Officer


Irish Future
Talbot Street
Dublin 1
irishfuture.ie
DEBRA Ireland: Research Officer


RESEARCH OFFICER

OVERVIEW

SALARY: ?**Apply on the website** - ?**Apply on the
website**,**Apply on the website** subject to experience
HOURS: Full-time/ part-time 4 days
REPORTING TO: Research Manager
LOCATION: 8 Clanwilliam Terrace, Grand Canal Quay, Dublin 2 (_* Note:
in light of the COVID-**Apply on the website** pandemic and
restrictions, this role will be full-time home-based while public
health restrictions remain in place)_

ABOUT DEBRA IRELAND

DEBRA Ireland is an ambitious patient-led charity that?s mission is
to drive research into the devastating condition EB (epidermolysis
bullosa), as well as support families living with EB in Ireland. We
are playing a leading role nationally and internationally in ensuring
that research has impact for patients.

We offer an exciting opportunity for a proactive, capable and
personable individual with excellent project management and
communication skills to make an impact on behalf of people affected by
EB.

ROLE OVERVIEW

Reporting to the Research Manager, the key elements of this role are
to manage all aspects of RESEARCH COMMUNICATION to the EB community of
families, donors and other stakeholders, develop and manage the
process for PATIENT AND PUBLIC INVOLVEMENT (PPI) IN RESEARCH, and
SUPPORT THE RESEARCH MANAGER is all other aspects of research. The
successful candidate will work as part of a passionate, supportive,
patient-centred team.

This job description acts as a guide to the role of Research Officer.
The role may change to meet the changing requirements of the
organisation at any time, after discussion with the post holder.

MAIN DUTIES AND RESPONSIBILITIES

* Manage and maintain the research section of the DEBRA Ireland
website.
* Produce accessible content on all aspects of EB research.
* Communicate across all stakeholder groups, helping to inform and
create a sense of community using all social media and traditional
media platforms.
* Stay abreast of national and international research in the field.
* Support the development and maintenance of systems for patient and
public involvement in EB research.
* Work with all stakeholders, including the DEBRA Research
Committee, to ensure patient impact from research.
* Support the development of an EB patient registry.
* Support the coordination of DEBRA-led research and advocacy
studies.
* Contribute to DEBRA Ireland?s research strategy.
* Support the development of DEBRA policies relating to research.
* Contribute to national and international research forums and
policy development.
* Support the research manager on all tasks relating to research and
research advocacy.

KNOWLEDGE/ EXPERIENCE

Essential

* Enthusiasm for the overall vision of DEBRA Ireland
* Degree level qualification (minimum)
* Good knowledge of the health research environment
* Experience in digital communications and regular user of social
media
* Excellent verbal and written skills and the ability to make
complex topics accessible
* Experience in managing and facilitating groups and meetings
* Personable, with excellent communication skills and an ability to
build relationships and work with professionals at all levels
* Exceptional project management and computer skills, with excellent
attention to detail
* Self-motivated, highly capable of working independently and with a
strong work ethic
* Flexibility to occasionally travel and work outside standard hours

Desirable

* PhD or Research Masters
* Experience working in the charity sector
* Experience in patient and public involvement

FURTHER INFORMATION

To learn more about our research see

We need : English (Good)

Type: Permanent
Payment:
Category: Health

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